Thursday,
September 8, 2005 - I'm staying at the hospital tonight to be closer to
Jacob so I don't have the means to update his website, however I do have
access to my email!
Jacob was extubated at 7:00 PST. As of right now, he is doing REMARKABLY well!!! We just did a CO2 check at 10:00 PST and its better then normal! It's right where it should be!
He's currently
on a NCPAP (Nasal Constant Positive Air Pressure). This is in his nose
similiar to a nasal canula, but instead of just flowing oxygen it gives a
little pressure to hopefully keep his lungs open. He is also on his belly
which he seems to really enjoy. Being on his belly will allow the
secretions to stay more in his mouth instead of draining into his lungs.
He's doing a lot of "eh heming" trying to clear out his throat which is a
good sign, now he just needs to get the coughing down & he'll be clearing
out his lungs in no time.
They won't do another CO2 check until 7:00 PST tomorrow morning, unless something tells them otherwise. Right now he is just doing wonderful. I'm not trying to get my hopes up too much quite yet, but so far I think he's amazed all the doctors...here's praying he'll keep it up!
He goes in for the 6 hour sleep study tomorrow morning at 10:00 PST as long as he continues to do as well as he is.
I'll try to come back again sometime tomorrow to update you some more.
Keep those hard core prayers coming!
Overall Status: So far so good!
Visitors: Colleen, Sara & Jared
Dinner Provided By: Colleen, Sara & Jared
Saturday,
September 10, 2005 - Jacob continues to do amazingly well! As of
yesterday about 6pm PST he was downgraded to a nasal canula!
He is currently on 1L of flow with about 30% oxygen. He is also no longer under the radiant warmer...he's in a REAL basinett!
GO JACOB!
His CO2 last night at Midnight PST was NORMAL.
If all continues to go well, we might actually be taking lil' Jacob home soon...could it really be happening???
Continue to keep us in your prayers!!! God is hearing each & every one of them.
Overall Status: So far so good!
Growth Stats:
Weight: 8lbs 10oz
Visitors: Brooke, Colleen & Reid
Sunday,
September 11, 2005 - Finally...my first night back home. Today,
we've had a little setback. Jacob's CO2 level has started to climb &
was increased over yesterday, however, it's still considered good. The
fear is his body is starting to compromise because he just can't keep his
lungs expanded enough. He also had an x-ray today that showed his left
lung on the verge of collapsing again...arggg So, Jacob spent most of
the day on his belly, which helps to keep the pressure off his lungs, and he
seemed to love it.
Dr A. Johnson called for a status this evening &
although his oxygen saturations are still doing good, we have had to
increase the percentage of oxygen he's getting. Jacob also had some
bradycardia (drop in heart rate) events today. It's unknown if it's
his lack of breathing that's causing the brady's or if seizures have caused
them, or a combination of both.
Instead of continuing to increase the oxygen, knowing that he's most likely compromising, Dr A. Johnson asked that we put the NCPAP back on. We will do another CO2 check & x-ray tomorrow morning to see if the NCPAP has helped to correct the problem.
We've also added Keppra back in the lineup within the past couple of days due to increased seizures. As of today, his seizures did seem to be less often, which is good.
Overall Status: So far so good!
Visitors: Celeste
Now onto something a little off the page. A couple weeks ago, you may recall in one of my daily updates, I had mentioned something that I was working on, but it was too soon to share it with everyone. It's now time.
Wednesday, September 14, 2005, 10:45am PST - Increased seizures throughout the night. 4 or more in last 45 minutes. Heart stops & loss of oxygen. On my way to hospital now...pray pray pray.
Overall Status: Critically Stable
Visitors: Laura, Mom Cray, Grandma & Grandpa, Chris C, Sara